Dataset Patient Centred Measurement – Acute Inpatient 2016/17 Survey

Name:
Patient Centred Measurement – Acute Inpatient 2016/17 Survey 
Data Provider (source):

Data steward: BC Ministry of Health. Data source: Fraser Health Authority, Vancouver Coastal Health Authority, Island Health Authority, Interior Health Authority, Northern Health Authority and the Provincial Health Services Authority. 

 
Description:

The Acute Inpatient 2016/17 Survey asked patients about their health-related quality of life and their experiences with the quality of care and services received as an inpatient in one of 78 acute care hospitals and two freestanding rehabilitation hospitals in British Columbia. The survey was coordinated by the BC Office of Patient-Centred Measurement (PCM) on behalf of the BC PCM Working Group, a group that includes representation from the BC Ministry of Health and the seven Health Authorities. 

 

 
Purpose:
Research and quality improvement 
Type of Data (select all that apply):
Health Care and Health Services 
Data Collection Method (select all that apply):
Individual Level Data 
Scope:
Provincial 
Identifiers used for linkage:
Personal Health Number, Date of birth 
Access requiredments and conditions for Researchers and Projects:

Details on the requirements for data access via PopData BC are available here: https://www.popdata.bc.ca/dataaccess/rdaf

Details on the requirements for research projects via PopData BC are available here: https://www.popdata.bc.ca/dataaccess/rdaf/eligibility   

Access Process: accessed through a Data Access Request (DAR) via PopData BC. Information on the DAR process can be found here: https://www.popdata.bc.ca/dataaccess/process  

 
Contact:
Population Data BC's Data Access Unit: dataaccess@popdata.bc.ca 
Inclusion:

The Acute Inpatient survey uses mostly four-point response scales without a neutral category (e.g., neither agree or disagree), with a mix of dichotomous questions and 11-point rating scales for global rating questions. Responses categories and the number of scale points for the CPES-IC survey were determined using rigorous testing by Canadian Institute for Health Information and Statistics Canada and validation processes, including cognitive interview and pilot studies that examined the scale reliability and validity of responses.

In addition to the close-ended questions, patients were asked to provide narrative comments at the end of the questionnaire in response to the question, “What is the most important change we could make on this hospital unit? We welcome your additional comments.” For the purposes of the Acute Inpatient 2016/17 survey, open-text comments were transcribed verbatim if the survey was completed over the phone and are written exactly as entered if the survey was completed online. All comments appear verbatim in the data set, with no corrections for grammar or content, although any personal identifiers are masked (XXXX). The survey vendor reviewed all comments to remove identifiers that could reveal the identity of the patient, doctors, nurses, or other staff. Also, comments that were insensitive to specific racial or ethnic groups were adjusted so that the group was no longer identifiable.  Narrative comments are included at the record level. The survey vendor then coded each comment into 6 predefined themes (General, Treatment, Communication, Staff, Procedures, and Miscellaneous) and 38 individual themes. For each theme, valence codes were assigned depending on whether the theme-specific comment was positive, negative, neutral, or positive and negative

 
Exclusion:

All fields from the survey are available for researcher request apart from identifiable information and data collected using the EQ-5D-5L measure. The BC PCM Working Group was given permission by the EuroQol Group to use the EQ-5D-5L as part of a side-by-side study with the VR-12 to inform decisions about a generic PROM instrument for use in the province of BC. The data collected using this instrument cannot be made available to researchers at this time.

 
Data is available from:
September 1 2016 - March 31 2017 
More Information (including references):

The BC Office of Patient Centred Measurement wants to support researchers who are interested in exploring and using the PCM data. Researchers may contact Dr. Donna Tafreshi (dtafreshi@providencehealth.bc.ca) with questions or if interested in receiving more information.

Additional information on the Acute Inpatient survey can be found here: https://www.popdata.bc.ca/data/health/pcm

 
log:
[2019-01-31 14:27] Sarah Kesselring: Edited by Sarah Kesselring (skesselring) [2019-01-31 14:27] Sarah Kesselring: Edited by Sarah Kesselring (skesselring) [2019-02-06 14:58] Jim Mintha: Edited by Jim Mintha (jim) [2019-02-07 10:14] Sarah Kesselring: Edited by Sarah Kesselring (skesselring)