Dataset Canadian Joint Replacement Registry (CJRR)

Name:
Canadian Joint Replacement Registry (CJRR) 
Data Provider (source):

Canadian Institute for Health Information

 
Description:

The Canadian Joint Replacement Registry (CJRR) was launched in May 2001 as a voluntary registry and has now been mandated in Ontario, Manitoba and British Columbia. It was developed to provide a rich set of additional patient-level clinical, surgical and prosthesis information beyond what is captured in the Hospital Morbidity Database, the Discharge Abstract Database and the National Ambulatory Reporting System, allowing for more in-depth analysis of hip and knee replacement procedures. Find out more about joint replacements from reports and analyses based on CJRR data.  

CIHI developed the Canadian Joint Replacement Registry (CJRR) in 2001 in collaboration with the Canadian Orthopedic Association. CIHI uses CJRR and other data sources to understand aspects of joint replacement such as hospitalizations, patient demographics, clinical issues, wait times and outcomes. Data on joint replacement procedures is received directly from:

  • Orthopedic surgeons
  • Facilities
  • Health regions
  • Provincial ministries of health

CJRR contains demographic, clinical and prosthesis data from all provinces and territories except Prince Edward Island and Nunavut*. Currently, CJRR reporting is mandatory in Ontario, Manitoba and British Columbia. Participation is voluntary in the other provinces and territories.

* Currently, no procedures are performed in Nunavut.

 

 
Purpose:
to deliver comparable and actionable information to accelerate improvements in health care, health system performance and population health across the continuum of care 
Type of Data (select all that apply):
Health Care and Health Services 
Data Collection Method (select all that apply):
Individual Level Data 
Scope:
Most provinces participate-see summary for details 
Identifiers used for linkage:
Personal Health Number, Date of birth 
Access requiredments and conditions for Researchers and Projects:

Data Access Conditions:

  • In addition to the CIHI data access condition below, requests for Quebec data are subject to review and authorization from the Quebec Privacy Commission (Commission d’accès à l’information du Québec) and the Québec Ministry of Health and Social Services (MSSS).
  • CIHI discloses health information and analyses on Canada’s health system and the health of Canadians in a manner consistent with its mandate and core functions. These disclosures typically fall into one of four categories:
    • Disclosures to parties with responsibility for the planning and management of the health care system to enable them to fulfill those functions;
    • Disclosures to parties with a decision-making role regarding health care system policy to facilitate their work;
    • Disclosures to parties with responsibility for population health research and/or analysis; and
    • Disclosures to third-party data requesters to facilitate health or health services research and/or analysis.
  • Prior to disclosure, CIHI reviews the requests to ensure that the disclosures are consistent with the above and meet the requirements of applicable legislation.
  • CIHI data disclosures are made at the highest degree of anonymity possible while still meeting the research and/or analytical purposes. This means that, whenever possible, data are aggregated.
  • Where aggregate data are not sufficiently detailed for the research and/or analytical purposes, data that have been de-identified using various de-identification processes may be disclosed to the recipient on a case-by-case basis and where the recipient has entered into a data protection agreement or other legally binding instrument with CIHI.
  • Only those data elements necessary to meet the identified research or analytical purposes may be disclosed.
  • For more information, please reference CIHI’s Privacy Policy:

Requirements for record-level data access:

  • Prior to disclosure, the recipient must sign a data protection agreement or other legally binding instrument that, at a minimum, contains the following requirements:
    • Prohibits re-identifying or contacting the individuals;
    • Prohibits linking the de-identified data unless expressly authorized in writing by CIHI;
    • Limits the purposes for which the de-identified data may be used;
    • Requires that the de-identified data be safeguarded;
    • Limits publication or disclosure to data that do not allow identification of any individual;
    • Requires the destruction of data, as specified;
    • Permits CIHI to conduct on-site privacy audits pursuant to its privacy audit program; and
    • Requires the recipient to comply with any other provision that CIHI deems necessary to further safeguard the data.
  • Prior to the disclosure of de-identified data for research purposes, the requester will provide CIHI with evidence of Research Ethics Board approval.
  • CIHI reserves the right to impose any other requirement(s) as needed on a case-by-case basis in order to maintain the confidentiality of de-identified data.
  • Prior to disclosure, program areas will evaluate the de-identified data to assess and subsequently minimize privacy risks of re-identification and residual disclosure, and to implement the necessary mitigating measures to manage residual risks.
  • CIHI will not disclose de-identified data if it is reasonably foreseeable in the circumstances that it could be utilized, either alone or with other information, to identify an individual and that, where it is reasonably foreseeable that it could be used to identify an individual, the information will be treated as personal health information.

Access process:  All data access requests can be initiated at the following CIHI webpage: https://www.cihi.ca/en/access-data-and-reports/make-a-data-request, and complete an Access Data Inquiry Form.

 
Contact:
Phone: 1-613-241-5543 Email: help@cihi.ca 
Inclusion:

n/a

 
Exclusion:

n/a

 
Data is available from:
From: Data from 2003–2004 onward is available for data requests. CJRR data is collected on a fiscal-year basis (based on surgery date), running from April 1 to March 31.  
More Information (including references):

As of April 1, 2012, CJRR streamlined its data elements to a new minimum data set (MDS). These are aligned with the standard set by the International Society of Arthroplasty Registers:

Prior to April 1, 2012, CJRR had a more detailed set of data elements. These included information on wait times, patient height and weight, and other information.

A number of documents with additional information on data quality are available on the CJRR website in the Data Quality section.

No official classification standards are used in the capture of CJRR data. Diagnosis and reason for revision information are captured using drop-down categories identified by the CJRR Advisory Committee.

Additional information on the CJRR can be found on CIHI’s website.

 
log:
[2019-02-11 14:13] Sarah Kesselring: Edited by Sarah Kesselring (skesselring) [2019-02-11 14:19] Sarah Kesselring: Edited by Sarah Kesselring (skesselring)