Dataset National Trauma Registry (NTR)

Name:
National Trauma Registry (NTR) 
Data Provider (source):

Canadian Institute for Health Information

 
Description:

The National Trauma Registry (NTR) closed on March 31, 2014. The NTR provided trauma health care providers, researchers and injury prevention programs with information on injury or trauma in Canada. Established in 1997, the NTR provided national hospitalization statistics that help educate Canadians about trauma and its consequences. The registry also provided a framework for trauma prevention efforts. Find out more about trauma and injuries, including reports and analyses based on NTR.

Injury data from the NTR Minimum Data Set (NTR MDS) continue to be available through the Discharge Abstract Database (DAD) and Hospital Morbidity Database (HMDB). Data from the historical NTR Comprehensive Data Set (NTR CDS) can be accessed via CIHI’s custom data access process.

 
Purpose:
to deliver comparable and actionable information to accelerate improvements in health care, health system performance and population health across the continuum of care 
Type of Data (select all that apply):
Health Care and Health Services 
Data Collection Method (select all that apply):
Individual Level Data, Administrative Data 
Scope:
Canada-wide 
Identifiers used for linkage:
Personal Health Number, Date of birth 
Access requiredments and conditions for Researchers and Projects:

Data Access Conditions:

  • In addition to the CIHI data access condition below, requests for Quebec data are subject to review and authorization from the Quebec Privacy Commission (Commission d’accès à l’information du Québec) and the Québec Ministry of Health and Social Services (MSSS).
  • CIHI discloses health information and analyses on Canada’s health system and the health of Canadians in a manner consistent with its mandate and core functions. These disclosures typically fall into one of four categories:
    • Disclosures to parties with responsibility for the planning and management of the health care system to enable them to fulfill those functions;
    • Disclosures to parties with a decision-making role regarding health care system policy to facilitate their work;
    • Disclosures to parties with responsibility for population health research and/or analysis; and
    • Disclosures to third-party data requesters to facilitate health or health services research and/or analysis.
  • Prior to disclosure, CIHI reviews the requests to ensure that the disclosures are consistent with the above and meet the requirements of applicable legislation.
  • CIHI data disclosures are made at the highest degree of anonymity possible while still meeting the research and/or analytical purposes. This means that, whenever possible, data are aggregated.
  • Where aggregate data are not sufficiently detailed for the research and/or analytical purposes, data that have been de-identified using various de-identification processes may be disclosed to the recipient on a case-by-case basis and where the recipient has entered into a data protection agreement or other legally binding instrument with CIHI.
  • Only those data elements necessary to meet the identified research or analytical purposes may be disclosed.
  • For more information, please reference CIHI’s Privacy Policy:

Requirements for record-level data access:

  • Prior to disclosure, the recipient must sign a data protection agreement or other legally binding instrument that, at a minimum, contains the following requirements:
    • Prohibits re-identifying or contacting the individuals;
    • Prohibits linking the de-identified data unless expressly authorized in writing by CIHI;
    • Limits the purposes for which the de-identified data may be used;
    • Requires that the de-identified data be safeguarded;
    • Limits publication or disclosure to data that do not allow identification of any individual;
    • Requires the destruction of data, as specified;
    • Permits CIHI to conduct on-site privacy audits pursuant to its privacy audit program; and
    • Requires the recipient to comply with any other provision that CIHI deems necessary to further safeguard the data.
  • Prior to the disclosure of de-identified data for research purposes, the requester will provide CIHI with evidence of Research Ethics Board approval.
  • CIHI reserves the right to impose any other requirement(s) as needed on a case-by-case basis in order to maintain the confidentiality of de-identified data.
  • Prior to disclosure, program areas will evaluate the de-identified data to assess and subsequently minimize privacy risks of re-identification and residual disclosure, and to implement the necessary mitigating measures to manage residual risks.
  • CIHI will not disclose de-identified data if it is reasonably foreseeable in the circumstances that it could be utilized, either alone or with other information, to identify an individual and that, where it is reasonably foreseeable that it could be used to identify an individual, the information will be treated as personal health information.

Access process:  All data access requests can be initiated at the following CIHI webpage: https://www.cihi.ca/en/access-data-and-reports/make-a-data-request, and complete an Access Data Inquiry Form.

 
Contact:
Phone: 1-613-241-5543 Email: help@cihi.ca or ntr@cihi.ca 
Inclusion:

The NTR is composed of two distinct data sets:

  1. The MDS contains demographic, diagnostic and procedural information on all acute care hospitalizations due to trauma in Canada. It has baseline data for 1994–1995.
  2. The CDS is made up of a subset of patients hospitalized with a severe injury at a participating trauma centre in Canada. Only severe injuries—defined as having a severity score greater than 12—are included in this data set. The severity score, known as an ISS, is an international scoring system created to calculate the severity of injuries so they can be compared internationally.

The NTR contains the following data elements:

For more information on data elements, please contact CIHI at ntr@cihi.ca.

 
Exclusion:

n/a

 
Data is available from:
1994/95 – 2012/13 
More Information (including references):

NTR used the ICD-10-CA/CCI classification system, which coded diagnoses and interventions in hospital separations. As of 2004–2005, all records have been reported in ICD-10-CA and CCI; prior to that, ICD-9, CCP and ICD?9?CM were used. In 2006–2007, Quebec began using ICD-10-CA and CCI to code diagnoses and interventions; prior to that, Quebec data was coded using ICD-9, CCP and ICD?9?CM.

Documentation

Further information on the NTR can be found on the CIHI NTR and NTR metadata websites.  

 
log:
[2019-02-11 14:02] Sarah Kesselring: Edited by Sarah Kesselring (skesselring)