Dataset The Home Care Reporting System (HCRS)

Name:
The Home Care Reporting System (HCRS) 
Data Provider (source):

Canadian Institute for Health Information

 
Description:

The Home Care Reporting System (HCRS) was launched in 2006–2007. It contains demographic, clinical, functional and resource utilization information on clients served by publicly funded home care programs in Canada. HCRS captures data on clients at multiple points throughout their home care services. HCRS captures standardized, client-specific clinical, demographic, administrative and resource utilization information within a single reporting framework. 

HCRS captures data on clients at multiple points throughout their home care services.

Information on organization characteristics that supports comparative reporting and benchmarking is also captured. Find out more about home care, including reports and analyses based on HCRS data

HCRS captures data from many types of organizations responsible for providing publicly funded home care services. Data submissions to HCRS come from provincial or territorial ministries of health and regional organizations (such as regional health authorities or community care access centres).

 
Purpose:
to deliver comparable and actionable information to accelerate improvements in health care, health system performance and population health across the continuum of care. 
Type of Data (select all that apply):
Health Care and Health Services 
Data Collection Method (select all that apply):
Individual Level Data, Administrative Data 
Scope:
Canada-wide 
Identifiers used for linkage:
Personal Health Number, Date of birth 
Access requiredments and conditions for Researchers and Projects:

Data Access Conditions:

  • In addition to the CIHI data access condition below, requests for Quebec data are subject to review and authorization from the Quebec Privacy Commission (Commission d’accès à l’information du Québec) and the Québec Ministry of Health and Social Services (MSSS).
  • CIHI discloses health information and analyses on Canada’s health system and the health of Canadians in a manner consistent with its mandate and core functions. These disclosures typically fall into one of four categories:
    • Disclosures to parties with responsibility for the planning and management of the health care system to enable them to fulfill those functions;
    • Disclosures to parties with a decision-making role regarding health care system policy to facilitate their work;
    • Disclosures to parties with responsibility for population health research and/or analysis; and
    • Disclosures to third-party data requesters to facilitate health or health services research and/or analysis.
  • Prior to disclosure, CIHI reviews the requests to ensure that the disclosures are consistent with the above and meet the requirements of applicable legislation.
  • CIHI data disclosures are made at the highest degree of anonymity possible while still meeting the research and/or analytical purposes. This means that, whenever possible, data are aggregated.
  • Where aggregate data are not sufficiently detailed for the research and/or analytical purposes, data that have been de-identified using various de-identification processes may be disclosed to the recipient on a case-by-case basis and where the recipient has entered into a data protection agreement or other legally binding instrument with CIHI.
  • Only those data elements necessary to meet the identified research or analytical purposes may be disclosed.
  • For more information, please reference CIHI’s Privacy Policy:

Requirements for record-level data access:

  • Prior to disclosure, the recipient must sign a data protection agreement or other legally binding instrument that, at a minimum, contains the following requirements:
    • Prohibits re-identifying or contacting the individuals;
    • Prohibits linking the de-identified data unless expressly authorized in writing by CIHI;
    • Limits the purposes for which the de-identified data may be used;
    • Requires that the de-identified data be safeguarded;
    • Limits publication or disclosure to data that do not allow identification of any individual;
    • Requires the destruction of data, as specified;
    • Permits CIHI to conduct on-site privacy audits pursuant to its privacy audit program; and
    • Requires the recipient to comply with any other provision that CIHI deems necessary to further safeguard the data.
  • Prior to the disclosure of de-identified data for research purposes, the requester will provide CIHI with evidence of Research Ethics Board approval.
  • CIHI reserves the right to impose any other requirement(s) as needed on a case-by-case basis in order to maintain the confidentiality of de-identified data.
  • Prior to disclosure, program areas will evaluate the de-identified data to assess and subsequently minimize privacy risks of re-identification and residual disclosure, and to implement the necessary mitigating measures to manage residual risks.
  • CIHI will not disclose de-identified data if it is reasonably foreseeable in the circumstances that it could be utilized, either alone or with other information, to identify an individual and that, where it is reasonably foreseeable that it could be used to identify an individual, the information will be treated as personal health information.

Access process:  All data access requests can be initiated at the following CIHI webpage: https://www.cihi.ca/en/access-data-and-reports/make-a-data-request, and complete an Access Data Inquiry Form.

 
Contact:
Phone: 1-613-241-5543 Email: help@cihi.ca 
Inclusion:

HCRS captures standardized, client-specific clinical, demographic, administrative and resource utilization information within a single reporting framework.

 
Exclusion:

n/a

 
Data is available from:
Longitudinal data is available from 2006 onwards. Prior to 2006, limited data is available for some organizations only. 
More Information (including references):

Data Elements

 Key components of HCRS are:

  • The Resident Assessment Instrument–Home Care (RAI-HC©)
  • The interRAI–Contact Assessment (interRAI-CA©)

The RAI-HC© and interRAI-CA© are two assessment instruments developed by interRAI© to assess and measure outcomes and resource use across the continuum of care.

The RAI-HC© provides the clinical data set for long-term supportive care and maintenance home care clients. This standardized instrument provides a common language to assess the health status and care needs of individuals. It also provides a rich data source for planning and quality improvement, including information on:

  • Health, functional and cognitive status
  • Environmental assessment
  • Treatments
  • Medications

The interRAI-CA© captures a brief profile of all people served through screening or home care intake processes.

In addition to the data elements, the RAI-HC© assessment instrument automatically populates a number of outputs or measures, including:

  • Clinical Assessment Protocols used by clinicians to identify risk and support care planning
  • Outcome scales that summarize function in areas such as cognition, physical function and frailty/instability
  • The RUG-III case mix methodology
  • Risk-adjusted quality indicators

These derived variables are also available on request.

More detailed information about the HCRS data elements can be found in CIHI's eStore:

 
log:
[2019-02-11 12:19] Sarah Kesselring: Edited by Sarah Kesselring (skesselring)