Dataset Continuing Care Reporting System (CCRS) - Community Care

Name:
Continuing Care Reporting System (CCRS) - Community Care 
Data Provider (source):

Canadian Institute for Health Information

 
Description:

The Continuing Care Reporting System (CCRS), launched in 2003, contains demographic, clinical, functional and resource utilization information on individuals receiving continuing care services in hospitals or long-term care homes in Canada. Nursing staff and other health providers conduct assessments of individuals in two types of participating publicly funded facilities: hospitals with continuing care beds, commonly known as extended, auxiliary, chronic or complex care beds, and residential care facilities, commonly known as nursing homes, personal care homes or long-term care facilities. Information on facility characteristics that supports comparative reporting and benchmarking is also captured.

Find out more about residential care and hospital-based continuing care, including reports and analyses based on CCRS data.

 
Purpose:
to deliver comparable and actionable information to accelerate improvements in health care, health system performance and population health across the continuum of care. 
Type of Data (select all that apply):
Health Care and Health Services 
Data Collection Method (select all that apply):
Individual Level Data, Administrative Data 
Scope:
Canada-wide 
Identifiers used for linkage:
Personal Health Number, Date of birth 
Access requiredments and conditions for Researchers and Projects:

Data Access Conditions:

  • In addition to the CIHI data access condition below, requests for Quebec data are subject to review and authorization from the Quebec Privacy Commission (Commission d’accès à l’information du Québec) and the Québec Ministry of Health and Social Services (MSSS).
  • CIHI discloses health information and analyses on Canada’s health system and the health of Canadians in a manner consistent with its mandate and core functions. These disclosures typically fall into one of four categories:
    • Disclosures to parties with responsibility for the planning and management of the health care system to enable them to fulfill those functions;
    • Disclosures to parties with a decision-making role regarding health care system policy to facilitate their work;
    • Disclosures to parties with responsibility for population health research and/or analysis; and
    • Disclosures to third-party data requesters to facilitate health or health services research and/or analysis.
  • Prior to disclosure, CIHI reviews the requests to ensure that the disclosures are consistent with the above and meet the requirements of applicable legislation.
  • CIHI data disclosures are made at the highest degree of anonymity possible while still meeting the research and/or analytical purposes. This means that, whenever possible, data are aggregated.
  • Where aggregate data are not sufficiently detailed for the research and/or analytical purposes, data that have been de-identified using various de-identification processes may be disclosed to the recipient on a case-by-case basis and where the recipient has entered into a data protection agreement or other legally binding instrument with CIHI.
  • Only those data elements necessary to meet the identified research or analytical purposes may be disclosed.
  • For more information, please reference CIHI’s Privacy Policy:

Requirements for record-level data access:

  • Prior to disclosure, the recipient must sign a data protection agreement or other legally binding instrument that, at a minimum, contains the following requirements:
    • Prohibits re-identifying or contacting the individuals;
    • Prohibits linking the de-identified data unless expressly authorized in writing by CIHI;
    • Limits the purposes for which the de-identified data may be used;
    • Requires that the de-identified data be safeguarded;
    • Limits publication or disclosure to data that do not allow identification of any individual;
    • Requires the destruction of data, as specified;
    • Permits CIHI to conduct on-site privacy audits pursuant to its privacy audit program; and
    • Requires the recipient to comply with any other provision that CIHI deems necessary to further safeguard the data.
  • Prior to the disclosure of de-identified data for research purposes, the requester will provide CIHI with evidence of Research Ethics Board approval.
  • CIHI reserves the right to impose any other requirement(s) as needed on a case-by-case basis in order to maintain the confidentiality of de-identified data.
  • Prior to disclosure, program areas will evaluate the de-identified data to assess and subsequently minimize privacy risks of re-identification and residual disclosure, and to implement the necessary mitigating measures to manage residual risks.
  • CIHI will not disclose de-identified data if it is reasonably foreseeable in the circumstances that it could be utilized, either alone or with other information, to identify an individual and that, where it is reasonably foreseeable that it could be used to identify an individual, the information will be treated as personal health information.

Access process:  All data access requests can be initiated at the following CIHI webpage: https://www.cihi.ca/en/access-data-and-reports/make-a-data-request, and complete an Access Data Inquiry Form.

 
Contact:
Phone: 1-613-241-5543 Email: help@cihi.ca 
Inclusion:

Coverage includes detailed clinical, functional and service information that identifies residents’ preferences, needs and strengths, and provides a snapshot of the services they use. Historical data coverage varies.

 
Exclusion:

n/a

 
Data is available from:
Longitudinal data is available from 2003 onwards. Prior to 2003, limited data is available for Ontario hospitals only. 
More Information (including references):

Data Elements

Data is primarily collected using the Resident Assessment Instrument Minimum Data Set (RAI-MDS 2.0), a clinical assessment instrument developed by interRAI. The RAI-MDS 2.0 contains more than 500 data elements that document clinical and functional characteristics of residents, including:

  • Cognitive function
  • Vision
  • Psychosocial well-being
  • Continence
  • Health conditions
  • Skin condition
  • Treatments/procedures
  • Communication/hearing
  • Mood and behaviour
  • Physical function
  • Disease diagnosis
  • Nutritional/oral status
  • Activity patterns

 The RAI-MDS 2.0 assessment instrument also automatically populates:

  • Clinical Assessment Protocols, used by clinicians to identify risk and support care planning
  • Outcome scales that summarize function in areas such as cognition, physical function and frailty/instability
  • RUG-III case mix methodology and risk-adjusted quality indicators

More detailed information about the CCRS data elements can be found in the Resident Assessment Instrument (RAI) MDS 2.0 User's Manual. Further information is available on CIHI’s CCRS website.  

 
log:
[2019-02-11 12:09] Sarah Kesselring: Edited by Sarah Kesselring (skesselring) [2019-02-11 12:30] Sarah Kesselring: Edited by Sarah Kesselring (skesselring)